It’s a big, stressful week. Sometimes I feel like I should just set up camp in a medical clinic. We traveled to the Milwaukee area to stay with family yesterday, but not before making yet another trip to our pediatrician’s office at home. C was jumping on the bed and, despite being moved away from Baby Jo, managed to fall on top of her face. She screamed and cried inconsolably for 15 minutes. I called the pedi’s office and they said they could see her and make sure she was okay. It was a hard hit and she was just screaming so hard.
So we packed up the car and took yet another trip to the doctor. I really like our pediatrician, but sheesh! We see him way too often. Most Valuable Patients? Probably.
They gave Baby Jo the all-clear and other than a swollen eye, she’s doing okay. We headed to Milwaukee for C’s appointment with an Occupational Therapist recommended by Hubster’s cousin.
C’s been experiencing sensory problems since…birth? I never really realized it was a problem until later, and I really never knew how much of a problem it was until Baby Jo came along and I had an entirely different experience with a child. This OT came highly recommended and I can see why.
She worked with C for 1.5 hours and gave us so many ideas for him. She gave us brushes for brushing his skin, a weighted blanket to help comfort him enough to sleep well, and some Lycra bodysuits to provide him deep pressure input throughout the day. She gave us all these things for free, just because she wants to help him. I was amazed, and so thankful. She provided contact information for a very experienced neurodevelopmental speech therapist that I can contact for ideas about C’s case; and she gave a recommendation for a therapy clinic in our area.
The OT thinks that there may be something physiological in relation to C’s feeding issues, since he even grazed on his bottles as an infant. I think the feeding team can address those things at the end of October, but in the meantime I’m planning to get a referral to that therapy clinic from his pediatrician. I think that if we can find a way to help him with the stress of his sensory problems, he might make progress in all areas.
C is also scheduled for G-tube surgery tomorrow at Children’s Hospital of Wisconsin, where he will receive a feeding tube that goes directly into his stomach instead of via his nose like he currently has. I think this will relieve a lot of stress for him, because he won’t be irritated by a tube in his nose and throat, tape on his face, and needing to sit for four 45-60 minute feedings each day. Apparently feedings are much quicker with G-tubes.
I know that it will be difficult to see my baby boy go off to surgery, but I think that life will become less stressful for him (and us!) once he has the G-tube.
I apologize for the marathon update. There’s a lot going on! We have a free day today before the surgery, and I finally have a chance to sit, breathe, and write – it’s nice!
Again, thank you for your tweets, comments and messages of support, prayers and love. It’s so wonderful knowing that you’re in our corner!