On Tuesday, C had a gastric emptying test done at Children’s Hospital of Wisconsin. Delayed gastric emptying is something that several of you mentioned to me as a possibility. I did some research, pushed to switch doctors, insisted on the test, and – lo and behold – C has delayed gastric emptying (gastroparesis)!
C had to lie still for 90 minutes while they took various images of his gastrointestinal system. Apparently, 60 minutes is the average time for a child his age to digest half of his intake. It took C 111 minutes to digest half of the formula he drank. Wow.
I did a happy dance when I received the phone call with the test results, because now we have a diagnosis to take in and move forward. C will start taking a low dose of erythromycin to help his stomach contract and push his stomach contents through his system. While it remains clear that he deals with sensory processing disorder, we can move forward with retraining him how to eat. I’m eager for him to no longer associate food with pain and discomfort.
Naturally, my happy dance was closely followed with feelings of guilt. This explains so much of C’s infancy and relationship with food. He was a colicky baby that never slept well. He would graze on his bottles throughout the day. He never was interested in eating. My poor boy dealt with a lack of appetite, reflux and most likely stomach pain throughout his life. This makes me so sad for him. No wonder the boy never wanted to eat. Eating hurts. 🙁
Thank you to those of you that brought this to my attention, and thank you to all of you who encouraged me to push forward and continue to advocate for C. Some days I thought we’d never figure it out, and on those days your kind words, prayers and thoughts kept us going.
If you’re in the midst of a child’s medical problems, please keep advocating. C’s former GI doctor did not want to conduct further testing. He told us he’d see us in 4-6 months. Everything in me believed that the root of C’s feeding problems was physiological. Listen to your gut. If one person says no, go elsewhere. You know what’s best for your child.