One year ago, I never would have considered the possibility that C would have a feeding tube. I was mortified when it was mentioned as a possibility in July 2013. The thought that my child had such severe feeding challenges that he would require a tube to be surgically placed in order to sustain him…it was overwhelming.
We are nearing the six month anniversary of C’s g-tube placement. It’s been quite a ride, but I am eternally grateful for his feeding tube. His g-tube has relieved the intense stress of trying to get C to eat orally. He was diagnosed with gastroparesis, and we found a medication that helps his stomach contract. We’ve been able to work on his therapy for sensory processing disorder at his pace. The tube comes with its own challenges, but the benefits clearly outweigh any negative aspects.
C is back on the growth charts. He’s growing, jumping, running, thriving. We’ve switched to a blenderized diet that seems to suit him very well. Hubster and I have learned how to handle buttons, syringes, tubes, feedings and administering medication via tube. We’ve figured out what granulation tissue is and how to treat it. We’ve discovered the best ointment to put around C’s tube to protect his skin. C has become comfortable with his tube and, while he still picks at it, he is no longer afraid to look at it.
I’m so proud of my tubie, and I’m so proud of our family for how far we’ve come these past six months. 🙂