It was a typical day at C’s weekly therapy for sensory processing disorder. We saw his occupational therapist and speech therapist today. The only difference was Hubster joining me on his day off. Oh, and C’s therapists think he can go down to one appointment per month instead of one per week.
Yes, that was my reaction. Surprise and fear! C has made tremendous strides in therapy, specifically in the last two months. He isn’t speaking in sentences; the child is speaking in paragraphs. He is using descriptive words, providing information that isn’t being pulled out of him, processing language quickly and following multi-step directions. He is less aggressive toward his sister, more rational, completely potty trained (except overnight), and doing well as we scale back his sensory diet. He has taken strides in feeding therapy as well: trying new foods, taking more bites, approaching it with less emotionality.
This is not the same child that stepped into that therapy center in February.
I am thrilled with his progress; yet, I am terrified to change things up in any way.
Hubster and I always find ourselves in this place. Every time we need to change any aspect of C’s care, it is scary. Things are going well. Why rock the boat?
At the same time, I know that we can’t coast along forever. We’re at his therapy center three days each week. He’s in a feeding group and a sensory social group. In August, he was going for individual therapy twice per week. He has done a lot of hard work to get here. He continues to work hard at his feeding. His awesome therapists armed us with a new method for him last week and he is doing very well with it.
I could shout his therapists’ praises from the rooftops! They are amazing with C and with teaching me how to care for him. We would not be here without the intensive therapy he has received over the past eight months.
WAIT – THERE’S MORE!
C is doing well enough with eating that we are going to start playing around with the volume of his tube feedings in hope that he will increase his oral intake. He is most receptive to oral intake at lunch, so I’m going to start by eliminating that tube feed. Don’t worry, though. If I find that he’s not consuming enough orally, it is easy to get him right back on track with calorie intake. Life is so much different now that he’s doing well on growth charts and has that g-tube.
Can you even believe it? I still can’t!