Now, that’s my boy. That mischievous, adventurous, joyful spark has returned to his eyes. Today was quite a positive day. After receiving two 4-ounce tube feedings yesterday, he woke up with a little more energy. He ate his usual graham cracker, but also ate a cup of peaches! We were happily surprised. That was a precursor for how the day would go.
My sweet C started requesting food. He ate french fries, a few bites of a pizza and a chocolate chip cookie for lunch. He had some goldfish crackers, teddy grahams and two bite-sized chunks of string cheese for an afternoon snack. For dinner, he ate an entire cup of mandarin oranges, 3/4 of his little serving of macaroni and cheese, and about 9 french fries. It’s a wonderful feeling to see him eating. This is more than he has consumed in a single day in…two months? Perhaps longer.
After each meal and snack, he is receiving his tube feeding. He is currently receiving 50% of what his daily caloric intake should be. They are increasing that by 15% each day, taking it slow to prevent refeeding syndrome, which I described in last night’s post. This means that we will be in the hospital until Tuesday or Wednesday. He will be going home with the feeding tube, so they will be teaching us how to insert it. I’m slightly terrified.
He had so much more energy today. He always talks a lot, but he’s starting to talk animatedly again. He’s very expressive and that’s starting to come back into his speech. He ran around more than I’ve seen him run in months. It was almost like he didn’t know what to do with all of his energy, because he was just running through the halls!
We also had some wonderful visitors today. My mom came to visit with our Baby Jo. To say that C was thrilled to see his sister would be an understatement. He adores her and was so happy to be with her.
Hubster and I were pretty happy to be reunited with our baby, too. 😉
My aunts and an uncle visited. C took my uncle to the play room, and he sent a text to my aunt that cracked us up: C is speaking in tongues. Send an interpreter! 🙂
My cousin and two of her daughters also visited. C is just two weeks older than one of them, and they were having races down the hall with some of the vehicles. I guess the nurses were cheering them on! Too fun. C also received a bunch of trucks and trains from my cousin, and he has been having so much fun playing with them. Thank you, K!
Today was a good day. All his labs have come back normal thus far as they continue to check his blood levels during the refeeding process. We’re so encouraged by his progress. Thank you all so much for your continued prayers and well wishes. You all are so wonderful!