Do you kiss your child’s owies to “make it better?” I love that C still comes to me when he bumps an elbow or stubs a toe so that I can, “Kiss it and make it better!” He and Baby Jo were playing when she accidentally got hurt. The exchange that came next melted our hearts! These two siblings love each other more than words can say.
I’m sitting here in silence after my children are in bed and it hit me: it happened two years ago. Two years ago, I called the doctor and the pediatric GI because C stopped eating and drinking. He was lethargic. We were told to get him to Children’s Hospital. I rushed around, packing and making arrangements for 3-month-old Baby Jo.
“Any conditions, allergies, or other things we should be aware of?” I have answered variations of this question hundreds of times. Experience has taught me to write small in order to fit everything into that little space. My sweet boy. In addition to all of the awesome qualities that 4-year-olds have, my C comes with multiple diagnoses. Gastroparesis, g-tube, sensory processing disorder, autism. There are only four things, but they pack a punch.
Every morning, I struggle to keep C on task in order to get him out the door and to the center (for autism therapy) on time. I could tell you that this is a challenge, but that word does not quite give justice to what I face each morning. It wouldn’t describe the days I chase him around the apartment, trying to lasso a shirt over a moving target. You wouldn’t know about the times I get hit and kicked while trying to administer a tube feeding. You certainly wouldn’t expect the morning we had yesterday, when I asked him to dress himself after learning that he has been working on it at therapy and is now capable of doing so. Over an hour of crying, screaming, writhing on the floor and yelling ended in Hubster helping C to get dressed just so we could get out of the apartment on time.
“Mommy, I got this big, blue truck for you. It’s your birthday present. We can share it. When you’re done playing with it, then I can have it. It’s my turn right now.”
I don’t know when his arms and legs got so long, but when he is asleep I still see him as my darling little baby. This night was out of the ordinary. C doesn’t usually like stuffed animals. He asked to squeeze Mickey, commented on how soft Mickey was, and fell fast asleep.