Coming Up for Air {Part Two}

This is the second post in a three-part series about reaching the point in C’s diagnosis and early intervention in which I am finally coming up for air. Read the first post here.

C and Baby Jo Thanksgiving 2013

When he aged out of Birth to Three, he finally started receiving good help from an Occupational Therapist and Speech Therapist for his Sensory Processing Disorder. We spent so much time with them and he made a lot of progress. He was hospitalized again that summer for an inpatient video EEG and an MRI. We thought he was experiencing absent seizures. We discovered abnormal brain activity that put him at high risk for seizures, but he did not have epilepsy.

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Coming Up for Air {Part One}

Today begins a three-part series about reaching the point in C’s diagnosis and early intervention in which I am finally coming up for air. 

Baby C, Hubster and me

Deep in my heart, I always knew there was something going on with C. Babies can be difficult, but it just didn’t seem right for mine to spend most of his days and nights crying. It didn’t seem right that he would graze on a bottle throughout the day, never appear comfortable, and constantly need to be held. I think back to that time and it hurts to think about how I stifled the nagging feeling that something was wrong. The doctors told me he was okay and they must have known more than I, as a first-time mom, did.

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Preceded by Labels

Preceded by Labels

“Any conditions, allergies, or other things we should be aware of?” I have answered variations of this question hundreds of times. Experience has taught me to write small in order to fit everything into that little space. My sweet boy. In addition to all of the awesome qualities that 4-year-olds have, my C comes with multiple diagnoses. Gastroparesis, g-tube, sensory processing disorder, autism. There are only four things, but they pack a punch.

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Free To Be Adventurous This Summer with all free clear

Disclosure: This post is sponsored by all free clear. The thoughts and opinions below are entirely my own.

Free To Be Adventurous #FreeToBe #sp

Summer is about family, outdoors, adventure, picnics and ice cream. If you are a parent or caregiver, like me, you might have just read between the lines and thought one thing: laundry. Lots of it! Being adventurous is synonymous with getting dirty. Baby Jo has mastered the art of adventure and mess-making. I use all free clear to save her clothes from her adventurous spirit. This summer, we can all be free to be adventurous – and get a little dirty – with the help of all free clear hypoallergenic detergent. Adventure can be a good thing again! Here are some of our favorite ways to be adventurous:

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When it’s hard to treasure every moment, because of autism.

When It's Hard to Treasure Our Days Together

As parents, we love our children with all of our being. They are so much a part of us that we feel joy when they smile and pain when they cry. We are bombarded with messages to treasure every moment. Life is fleeting. Our children are only young for a short amount of time. That’s true; but sometimes it is hard to treasure our days together. There is another truth that I have come to know. Sometimes, autism can be an asshole.

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For the parent who is trying their best.

Sometimes you try your hardest, but your partner walks in the door at night to find you unshowered, wearing pajamas amidst a tornado of toys, wine glass in hand and tears streaming down your face. Your partner looks across the room and sees the children, faces illuminated by the electronic devices you gave them in order to allow yourself a moment of peace.

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