This update will be mostly in pictures again. I’m exhausted and he’s just so darn cute. 😉
We checked in at Day Surgery on Wednesday and were ushered into a room right away. C put on a teeny tiny hospital gown and we looked out the window at all of the cars, trucks and vans in the parking lot.
He was sedated before going into surgery. We were walking the hall and Hubster, holding C, looked at me and said, “Do you think it’s working yet?” Just in that moment, C’s eyes rolled a little, his head bobbed and he gave us a hysterical drunken smile. He flashed that smile to everyone until he was carried to surgery. It broke the tension for me, because it was hilariously cute! Still, I got an instant migraine the moment he was out of view.
The surgery was super quick, and C’s GI doctor said that everything went wonderfully. It wasn’t long before I was able to go back and see him in recovery, and soon they took him to his room just a few doors away from where he stayed earlier this month.
The dry erase board said, “Welcome Back C,” and the staff all remembered him. C slept for a while. (Shout-out to the West 11 staff of Children’s Hospital of Wisconsin, including a friend from college who stopped in to say hello. They are wonderful, and so good at what they do!)
He cried for a while when he woke up, but soon he was walking the halls and pushing his favorite toy from the play room.
Poor Hubster had to leave that night to get back home for work. I didn’t sleep much that night, sidled up next to my sweet boy. I snuck in a shower at 3:30am and mostly laid awake with my mind racing until the surgeons did rounds at 6:00am. The morning was spent learning how to care for C’s G-tube, administering a feeding, and being visited by various doctors and nurses. C required Tylenol for his discomfort, but handled everything like the brave fellow he is.
We were discharged by 1:00pm. C is doing pretty well now. I was told to expect him to be sore for about seven days before he’s back to his normal self. I still administer feedings four times per day, but now they take 10-15 minutes instead of 45-60 minutes. C’s still figuring out that these feedings don’t hurt him like they did with the NG tube that was in his nose. He seems less aggressive now that he doesn’t have that NG tube bothering him so much.
He doesn’t have any restrictions other than what he dictates for his own comfort level. I’m learning this whole G-tube care thing pretty quickly. It’s not as overwhelming as that binder full of information made it seem. In mid-November, he will go back and they will switch out the external tube for a flat button that will be almost flush with his skin. It’ll be nice for him to have that – no one will be able to see it, and it won’t be intrusive for him.
Thank you all for your support!