It Happened Two Years Ago

Hospital Day 4

I’m sitting here in silence after my children are in bed and it hit me: it happened two years ago. Two years ago, I called the doctor and the pediatric GI because C stopped eating and drinking. He was lethargic. We were told to get him to Children’s Hospital. I rushed around, packing and making arrangements for 3-month-old Baby Jo.

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Preceded by Labels

Preceded by Labels

“Any conditions, allergies, or other things we should be aware of?” I have answered variations of this question hundreds of times. Experience has taught me to write small in order to fit everything into that little space. My sweet boy. In addition to all of the awesome qualities that 4-year-olds have, my C comes with multiple diagnoses. Gastroparesis, g-tube, sensory processing disorder, autism. There are only four things, but they pack a punch.

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Much Needed Cuddles

Much Needed Cuddles with C

Every morning, I struggle to keep C on task in order to get him out the door and to the center (for autism therapy) on time. I could tell you that this is a challenge, but that word does not quite give justice to what I face each morning. It wouldn’t describe the days I chase him around the apartment, trying to lasso a shirt over a moving target. You wouldn’t know about the times I get hit and kicked while trying to administer a tube feeding. You certainly wouldn’t expect the morning we had yesterday, when I asked him to dress himself after learning that he has been working on it at therapy and is now capable of doing so. Over an hour of crying, screaming, writhing on the floor and yelling ended in Hubster helping C to get dressed just so we could get out of the apartment on time.

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Support Children’s Miracle Network Hospitals – and a $25 Walmart Gift Card Giveaway!

Disclosure: I received a Walmart gift card in exchange for this post. The Walmart gift cards and information have been provided by P&G. As always, the thoughts and opinions below are entirely my own.

Hospital Day 4

I vividly remember the days leading up to C’s initial hospitalization. The thought of a gtube was a far-off possibility, but then he stopped drinking water or eating food. He stopped climbing, jumping and dancing. He became lethargic. We were told to travel to Children’s Hospital of Wisconsin, a Children’s Miracle Network Hospital, to be admitted. Our stay lasted a few days. He received an NG tube during that visit, which was a feeding tube inserted into his stomach via his nose. We were taught how to measure the tube before each feeding to ensure it was still located in his stomach. We were taught how to tube feed our child formula since he would not eat by mouth.

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