(Kinda) Wordless Wednesday: Quiet Sibling Moments

When things are difficult, these quiet sibling moments are even more special. These two sat next to each other after bathtime to watch an episode of Daniel Tiger while C had his tube feeding. I live for these moments when they get along!

Quiet sibling moments #LittleMamaJama

The Truth is I’m Struggling

You may have gotten this from my posts about fear and the autism clinic last week, but the truth is I’m struggling. Special needs parenting is kicking my butt in a whole new way. I knew C would have a difficult time transitioning to preschool. I didn’t expect to see him lose skills and independence. I didn’t anticipate that he would get a cold and end up vomiting so many times that he hasn’t kept a full tube feeding down in days. Yes, vomiting from a cold; because that’s how his life is as a tubie.

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Crowd-Sourcing: Preparing for the Autism Clinic

C puts together Disney Planes puzzle

I’ve been reading articles, watching videos, observing my son and absorbing as much information as possible. I believe he may have high-functioning autism.

He has an appointment next month with a clinic specializing in autism and developmental disorders. Our first meeting will be with the clinic psychologist. She will determine if his case warrants an appointment with the rest of the team.

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(Kinda) Wordless Wednesday: Interrogation Techniques

With wind chills approaching -30 degrees, I opted to keep C home from school today. I used the extra time to teach him interrogation techniques.

Toddler Interrogation Techniques #LittleMamaJama

C’s First Day of School

Starting a new routine that includes school drop off is just plain weird! I do not know how my child got so big so quickly. Even with all the challenging days and nights, I don’t know how we arrived at preschool so quickly. I was apprehensive about today. He was leaving my care for a few hours. How could I be sure his needs were being met? How could I know he was okay?

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Tomorrow, you start school.

Tomorrow you start school. #LittleMamaJama

You reached over the bed rail for my hand. I squeezed it tightly, gazing into your eyes. I love you, my child. My heart.

As I looked at you and gave your little hand a squeeze, I was brought back to the countless nights I rocked you to sleep. I slept in the rocking chair with you many days and nights, because you would not sleep any other way. I held you, rocked you, breathed in your sweetness.

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Merry Imperfect Christmas!

Our plans for this year included Christmas Eve service at church, baking cookies for Santa, cooking a delicious meal, and driving around to look at Christmas lights. The reality of our Christmas? Two children with the flu, none of the things we had planned, and Hubster and I waiting for the flu to strike us, too.

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(Kinda) Wordless Wednesday: Brother and Boogers

I appreciate your love, brother, but I have a booger situation here.

Brother and Boogers

 

5 Tips for Surviving the Holidays with a Tubie

Disclosure: I received product from Orgain for sampling purposes. I am also an affiliate for Real Food Blends. I’m including these products below because C has used them and I believe in the mission of both of these companies.

5 Tips for Surviving the Holidays with a Tubie #LittleMamaJama

Stress runs high during the holidays! When you have a child with special needs, packing, traveling and attending holiday events can be even more stressful. When I’m packing my tubie’s supplies, I will admit to thinking that it would be easier to just stay at home! Here are five tips to avoid that feeling this season:

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(Kinda) Wordless Wednesday: O Christmas Tree

Is there anything better than the wonder in a child’s eyes during the holidays?

C and Baby Jo at the Christmas tree