I don’t know when his arms and legs got so long, but when he is asleep I still see him as my darling little baby. This night was out of the ordinary. C doesn’t usually like stuffed animals. He asked to squeeze Mickey, commented on how soft Mickey was, and fell fast asleep.
Disclosure: I received a Walmart gift card in exchange for this post. The Walmart gift cards and information have been provided by P&G. As always, the thoughts and opinions below are entirely my own.
I vividly remember the days leading up to C’s initial hospitalization. The thought of a gtube was a far-off possibility, but then he stopped drinking water or eating food. He stopped climbing, jumping and dancing. He became lethargic. We were told to travel to Children’s Hospital of Wisconsin, a Children’s Miracle Network Hospital, to be admitted. Our stay lasted a few days. He received an NG tube during that visit, which was a feeding tube inserted into his stomach via his nose. We were taught how to measure the tube before each feeding to ensure it was still located in his stomach. We were taught how to tube feed our child formula since he would not eat by mouth.
This week in C’s musings, he talks about his sleep habits including his new clock, blanket and sleeping bag; his chipped tooth; and his thumbs up/down system. C is my 4-year-old son with autism who has recently decided talking to his phone was a super fun thing to do. I wonder what he’ll have to say next week…
“Eat your grapes and then you can have some of Daddy’s potato chips. ”
Baby Jo quickly ate her bowl of grapes. I poured her a little bowl of “Daddy’s chips.”
C went into meltdown mode. Crying, screaming, hitting me. He yelled, “Daddy’s chips,” over and over.
“Mommy, take a picture with me!” C snapped a selfie and jumped next to his sister to take a selfie with her. Then he took his phone (one of our old iPhones that now functions as an iPod Touch) into his room and started talking. I peeked in to see what was going on and realized he was recording himself talking to his phone. C was vlogging.
I remember spending hours in our rocking chair, rocking baby C to sleep and holding him while he slept. He rarely fell asleep without being rocked and rarely stayed asleep without being held. We spent mornings, afternoons and nights in that chair together. I rocked him back and forth, back and forth, back and forth. I memorized his sweet face. The curve of his cheek. The movement of his eyelids. The purse of his lips.