Hubster works for the state and we have some pretty awesome insurance benefits…or so I thought. All of our preventative care is covered, we have a pretty low deductible, and a great coinsurance rate. I’ve discovered that not everything is rainbows and butterflies – we just got a heaping dose of that stuff that hits the fan.
Tuesday marked another day spent at Children’s Hospital of Wisconsin. We started the morning in ENT, where we discussed the neck x-ray that had revealed enlarged tonsils and adenoids. The second appointment involved a GI nurse burning off granulation tissue around C’s g-tube. He’s been through that process more times than I can remember but, as you might imagine, having your skin burned off is highly unpleasant. I’m pretty sure every child in the waiting room was thinking, “DON’T TAKE ME IN THERE!” Our day ended with the feeding team psychologist. We were given more suggestions and tips about how to encourage C’s exploration of different varieties of food.
I know that I haven’t updated you all on how C’s visit with the Children’s Hospital of Wisconsin feeding team went. In reality, it went better than expected; however, C’s behavior/meltdowns/outbursts continue to get worse and I’m just trying to survive day by day. One thing that happened at that appointment was the ordering of a neck x-ray to check the size of his adenoids and tonsils.
A friend of mine posted these words for me today as I prepared for C’s follow-up appointment with the GI doctor:
Just remember there is no more powerful force in the world than a mother fighting for their kid. You might feel defeated or like there are no other options, but you’ve gotten this far. Keep pushing!
I’m sure every mother whose child goes through health issues comes to this crossroads. The “It’s Not Fair” crossroads is inevitable when you’re seeing your child in numerous doctor’s offices, hospital rooms and coming out of anesthesia. Because it’s not fair. No child should have to visit a hospital. My child should not need a tube surgically placed into his stomach in order to receive nourishment.
C turned 18 months this week (update on that to come!), and that means he had to go to the doctor for his 18-month well-child visit. It went…okay.
He’s weighing in at just under 20 pounds and has dropped back into the 5th percentile for weight. The doctor recommended we see a nutritionist to talk about strategies to get him to eat more calories and/or types of food.