C at 10 months, giving the stink face while eating
Many of you know that C has never had much interest in eating. He’s almost always been in the 5th percentile for weight, and I’ve often stressed over getting him to eat enough food during the day. Even as a baby, he wasn’t all that interested in his bottles and would often eat just an ounce or two at a time. I didn’t start to get real concerned about things until the past year or so, and the stress just intensified for me with each passing month.
C at 16 months, possibly the last time he ate vegetables
C seemed to keep dropping foods out of his diet. Things that he normally enjoyed, he would start to refuse. I spoke with his pediatrician about this during his 2-year well child appointment in April. The doctor said to try ice cream and pediasure milkshakes twice/day and if he started dropping even more foods out of his diet, then it was time to bring him in and address this further.
It didn’t take long – maybe two or three weeks – before C stopped drinking his milkshakes. It happened gradually. He would only drink half of it. Soon, he would ask for it but not drink it. Finally he didn’t even ask for them anymore; and quite frankly, I got tired of pouring unused pediasure down the drain. That shiz is expensive!
C at 2 years, with his crackers
Within the past two weeks, the final decline occurred. He all but stopped eating his beloved yogurt, blueberries (or “boobies,” as he calls them!), and even his old standby, mac & cheese. He started living off of a diet based almost entirely on crackers and fruit snacks. He even refused to eat dinner at all for three nights in a row. I was beside myself.
I reached out to a family member on Hubster’s side, whose daughter has sensory processing disorder and experiences difficulties with food. We’ve been in contact for the past year about C’s feeding problems and I’ve been so grateful for her help as I navigate all of this. It was time to seek an evaluation for C.
On Wednesday, C and I met with his pediatrician. Thankfully, his pedi was incredibly receptive and helpful. He spent a lot of time with us and I could just see that his mind was working out the best way to help C. He’s almost positive, like I am, that it’s a sensory issue. He ran a few blood tests to check on C’s nutritional levels, ordered a prescription for a medication that is known to stimulate appetite in children, and also referred us to the feeding clinic at the Children’s Hospital of Wisconsin.
Unfortunately, the feeding clinic does not have any openings until October. OCTOBER! The pedi was dissatisfied with that as well, so he has referred us to a GI doctor and a dietitian at Children’s Hospital in the hopes that these appointments will help us get into the feeding clinic sooner. Right now, we’ve scheduled C’s appointment with the GI doctor for July 24th. I’m told that it’s the first step and after that appointment, we’ll be told if it’s necessary to see a dietitian.
I’m stressed, y’all. It’s so difficult watching my sweet, smart, funny boy getting thinner and thinner as he grows taller. He weighed in on Wednesday in the 1 percentile. ONE. It’s so difficult watching him refuse to eat and knowing that I’ve tried everything to help him. There’s nothing more that I can do. Now I just need to wait for the medical professionals to help us.
Please send positive thoughts and prayers for my sweet boy, that we may be able to get him evaluated earlier than October. I can’t imagine watching him survive on almost nothing but crackers and fruit snacks for that long.
Thank you for your support; and if your child has experienced a sensory processing disorder, I’d love to hear your story.