I can’t even express how awesome it is to see my boy’s personality returning. He was still my sweet, funny C, but he had lost that wide-eyed, adventurous fierceness that he’s had since birth. Well, my little boy is regaining that part of himself. He’s been running through the hallways so much that I’m sure all of the nursing staff knows who he is.
Today, his feeds were increased in volume by 15% again and he has responded well. His labs keep coming back normal, so they have reduced his blood draws to once each day. He didn’t consume as much food orally as he did yesterday; however, he is also getting more calories via the feeding tube so this didn’t surprise me.
For the most part, we are left to our own devices. They have shown us how to administer his tube feedings from start to finish. His vitals are taken every few hours, but outside of that we haven’t seen much of the hospital staff. The doctor in charge of this wing over the weekend told us that C is the least sick child on this floor, so he has been the last on the list of rounds. Hey, that’s something I don’t mind hearing – my boy is the least sick child in the hospital wing.
It sounds like Tuesday will be our final day here now, unless C has a setback with the feeding increases. I think that tomorrow we were going to be visited by one of the speech therapists who specializes in food disturbances, as well as C’s GI doctor.
Things are going well! Hubster has decided not to go back to work while C is here. When he told me that he didn’t feel right about leaving his boy in the hospital, I felt lucky that my children have such a wonderful, caring father. He’s amazing and I’m blessed to have him.
Hubster’s parents, brothers, sisters-in-law and nieces all came to visit today. C had so much fun showing his grandpa and cousins to the play room. It made me so happy to see that he was playing non-stop with them while they were here. He didn’t get tired or need alone time, like what had been happening so often.
As I struggle with having my heart torn between being here with my boy and being with my baby girl, I am feeling incredibly grateful for our wonderful family who is caring for our baby when we can’t be with her. We have such a fantastic support system sending messages, texts, phone calls and prayers. Thank you all so very much.
Oh, and here was some video I posted on my social media channels today. Just in case you missed it: