Traveling Down the Neurology Path

Toddler with Cars suitcase

It took me by surprise when they found abnormal brain activity during C’s sleep study in March. We were there to see why he wasn’t sleeping at night, thinking that it was related to tonsils or adenoids. The tonsils and adenoids were okay, but the abnormal brain activity was alarming. Apparently, it’s the type that is normal in 20 percent of people who experience it. I had a gut feeling that my C wasn’t in that 20 percent. We proceeded with an EEG in April. Those results were normal. Despite capturing some of his staring episodes on video, his pediatrician instructed us to wait and see. Should the episodes become more frequent, we would pursue further testing.

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HMOs are great unless you’re sick.

Hubster works for the state and we have some pretty awesome insurance benefits…or so I thought. All of our preventative care is covered, we have a pretty low deductible, and a great coinsurance rate. I’ve discovered that not everything is rainbows and butterflies – we just got a heaping dose of that stuff that hits the fan.

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More Complications

Another day, another problem. Yesterday I made an appointment to have the pediatrician switch out the G-tube attachment that I received in the mail. C started developing a rash around his G-tube site after I made the appointment. It continued to spread over the next 24 hours.

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The post in which I rant about C’s GI care.

A friend of mine posted these words for me today as I prepared for C’s follow-up appointment with the GI doctor:

Just remember there is no more powerful force in the world than a mother fighting for their kid. You might feel defeated or like there are no other options, but you’ve gotten this far. Keep pushing!

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C’s Feeding Disturbances

C at 10 months, giving the stink face while eating
C at 10 months, giving the stink face while eating

Many of you know that C has never had much interest in eating. He’s almost always been in the 5th percentile for weight, and I’ve often stressed over getting him to eat enough food during the day. Even as a baby, he wasn’t all that interested in his bottles and would often eat just an ounce or two at a time. I didn’t start to get real concerned about things until the past year or so, and the stress just intensified for me with each passing month.

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