C wants to share with you what he’s been working on! I am so proud of this kid. He has been working so hard with his staff at center-based autism therapy. At dinner, I asked him about new things he learned that day. He said I could share with you how he can now count to 20 and sing his ABC’s!
C will begin center-based ABA therapy for autism on June 1st. We chose center-based early intervention primarily based on the recommendations of the team that provided the diagnosis. He needs that social interaction to help him grow in the areas he struggles most. While in-home early intervention is an excellent choice for many families, I also felt that it wouldn’t be a good fit with our small apartment and the difficulty I would have separating Baby Jo and C during therapy sessions. We are very happy with the center, C loves it and we’re all excited for therapy to begin. But…I’m finding myself sulking about the whole situation.
It was a typical day at C’s weekly therapy for sensory processing disorder. We saw his occupational therapist and speech therapist today. The only difference was Hubster joining me on his day off. Oh, and C’s therapists think he can go down to one appointment per month instead of one per week.
In many households, this would be a normal lunchtime picture. Brother and sister eating at the table together, each of them feeding themselves their food.
In my home, this moment was enough to bring tears of joy to my eyes. My tubie with sensory processing disorder is doing a few amazing things in this picture:
The last detailed update that I gave you all about C’s health was when he had an EEG done to look further into the brain activity that was picked up during his sleep study. I didn’t update you on the results because I was a little confused by them. The EEG was normal; however, I showed a few videos of C’s episodes to his pediatrician. The pediatrician said that if he didn’t have a normal EEG, he would order one based on the videos. He recommended waiting to see if these episodes continued or started to occur more frequently. If so, then we’d look into a longer-term EEG and he’d have to stay in the hospital for it. If not, then we can just move forward. I haven’t noticed any changes in the past month.
The last few months have been filled with SO MANY DECISIONS. Yes, sometimes I felt like life was screaming at me to make all of them. I was stressed about doing the right thing, making the right choices, putting C on the right path. I was feeling a lot of pressure on my shoulders.